Stephen Heywood
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Stephen Heywood (1969 - November 26, 2006) was diagnosed with ALS in 1998, aged 29. Brother of James Heywood - d'Arbeloff founding director of the ALS Therapy Development Foundation – Stephen Heywood was a catalyst in the ALS research field, driving scientists and leaders to find effective treatments for ALS patients.
Prior to his diagnosis, Stephen worked as a carpenter in Palo Alto, California. He was the subject of His Brother’s Keeper, written by the Pulitzer Prize winning author Jonathan Weiner, and the documentary film, So Much So Fast, which premiered at the 2006 Sundance Film Festival.
Stephen lived in Newton, Massachusetts with his wife and son until his death at age 37. He died from a detached respirator in November 2006.
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